Raising for Rett's Syndrome

hi girls!!

i know pretty much all of you know about Lily-Ann having Rett Syndrome...but for those that don't i'll just explain a little

Rett Syndrome is a rare but severe neurological disorder affecting girls. Although rare, it is the most common genetic cause of severe disability within females and causes sufferers to be entirely dependent each and every day. Girls with Rett Syndrome will need 24-hour care for the rest of their lives and will be unable to walk, talk or even use their hands.

Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders…all in one little girl

It has been proven that Rett Syndrome symptoms can be reversed in mice, but obviously to keep the research going to find out if it can work in humans costs money.

myself, sam and my brother are planning to do a 24hour walk, from London to Dover on 17th September 2011 and would be really grateful for any support you ladies can give(even just a 'you go girl!) as this is a cause that is really close to my heart

if anyone would like to donate my just giving page for this event is www.justgiving.com/doingitforlily-ann

thanks so much ladies for even taking the time to read this post

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 5:56 am by *Meg*

Donated

It will show as Leah Marie on Paypal xx

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 5:57 am by Lisa

Lily-Ann is a gorgeous happy little person and I wish something would be found quickly!

I am going to be organising an Auction. This was Michelle&Danielle's idea as she has very kindly donated the Toy Bag she won in the raffle!

I will also be donating something from my 'shop'

So If anyone has anything they would like to Auction please PM me so we can get as much money raised as possible.

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 5:59 am by *Meg*

awww what a lovely idea both xx

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:02 am by Zee

Aww, Faye - I will defiantly donate hunni - Such a brilliant thing you are all doing Very Happy

Do we just do it through the link above? I will do it this Friday if thats ok?

Good luck to you all doing the walk Very Happy

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:07 am by kenty

leah...a huge thankyou for the donation...every single penny is so very appreciated

lisa...that is such a lovely generous idea...thankyou both(lisa and michelle)

zee...just click on the donate button and it'll send the money straight through...the walk isn't until september and the page will be open until just after so please don't feel like you have to donate now..or even at all

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:13 am by Zee

Oh I will defiantly be donating Very Happy

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:42 am by Char

im sorry its not much but i have donated! its a wonderful thing you are doing
lily-ann is a very lucky girl to have a mummy and daddy like you two x

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:45 am by kenty

i have just messaged you a thankyou on FB char...but again...thank you SO much!

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:54 am by LisaGandAmelia

Hey lovely! I'll definitely donate. I get paid in 2 days so will be straight on then xxx

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 6:58 am by Donna

When will the auction be and how
Long do I have to donate cause I don't have proper Internet till 1st august but I want to definitely give xxx

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 7:01 am by kenty

the page will be open right up until we do the walk in september so there really is no need for anyone to feel like they have to get donations in quick xxxx

thankyou girls...you're all the best!

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 7:08 am by Lisa

ummm well if the walk is on in September we could say middle of August? That gives us plenty of time to get items and bids!

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 7:35 am by Donna

Excellent I would hate to miss the deadline for this xxx

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 9:18 am by olliesmammy

Just donated hun xx

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 7:42 pm by Niccsy

will deff be donating just waitin til i have pennies on monday x

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 8:03 pm by Lita

Going with what Lisa has said about an auction. I was thinking that I could make some phone/bag charms and giving any money made by selling them to Faye for the cause.
Would anyone be interested in buying one for £3 each?

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 8:05 pm by Lita

Should have said that my plan is to make them with lavender/purple ribbon which is the colour for Rett Syndrome awareness and they would have a 'Hope' charm which is the idea of raising the money that we hope they find a cure.

Re: Raising for Rett's Syndrome Thu Jul 21, 2011 9:03 pm by Lita

Well I've ordered the stuff now so I will sell them one way or another!

Re: Raising for Rett's Syndrome Fri Jul 22, 2011 8:06 am by kenty

lita...when you've done them pop pics on fb and i'll try and sell some too...possibly to some of the Rett Mums who i think would love them

it's a lovely thing to do chick xx

Re: Raising for Rett's Syndrome Fri Jul 22, 2011 9:38 am by Lita

Ok hun, that's a fab idea Very Happy

No worries, i would really like to help and for once I quite possibly can Smile

x

Re: Raising for Rett's Syndrome Sat Jul 23, 2011 12:23 am by LisaGandAmelia

Just sent my donation Kenty xxx

Re: Raising for Rett's Syndrome Sat Jul 23, 2011 12:23 am by LisaGandAmelia

I would gladly bake some cupcakes for an auction, just have to cross fingers that they'd arrive in one piece through the post is all x

Re: Raising for Rett's Syndrome Sat Jul 23, 2011 12:42 am by Mrs Cruise & Dee

cupcakes

, NOM NOM NOM !!!

Re: Raising for Rett's Syndrome Sat Jul 23, 2011 5:38 am by kenty

that's lovely lisa..thankyou

i dunno what i can contribute, i'm a bit useless at making stuff and don't really own anything that would be worth any money?

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