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Lisa
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PostSubject: My Grandad   My Grandad - Page 2 EmptyTue Oct 05, 2010 10:26 pm

First topic message reminder :

Found out today that my Grandad has fallen over and broken his hip - he was in a care home and not well anyway with parkinsons, they think he had a stroke too.

Anyway he is in hospital in a coma and they have said he won't pull through - they aren't feeding him through a pipe so I can't see it being long :-(

I'm off to see him this afternoon to say goodbye Sad
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tigger



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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 5:54 am

So sorry to hear your news Lisa. I lost both my Granda's 21 and 20 years ago and my granny 9 and still think of them everyday.

Thinking of you xx
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stephandhannah

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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 5:55 am

oh god thats awful lisa. animals get treated better than that. how disgusting. I really hope its over soon for him and he doesnt suffer.

x
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 5:56 am

oh no...so sorry lisa Sad
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Mario



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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 5:59 am

Im so sorry Lisa. Im on the phone if you need anything.

What Jen said is true, he will not suffer from the withdrawal of food but i do disagree with the lack of pain relief. Ask if they use the liverpool care pathway there as if they are choosing to give him what we call TLC instead of active treatment to ease his passing they should have him written up for decent painrelief and any other meds required to make him comfortable. Its disgusting to just leave him. If you need any advice on the complaints procedure and making sure his needs are met text me. I cant promise to be any help but will do what i can
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:07 am

OH Lisa i'm so sorry.

Sending you my love, hugs and your in my thoughts xx
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:07 am

aww hun i am so sorry x Sad
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:11 am

i am so sorry lisa my thoughts are with you and family! xx
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:17 am

lisa , im so sorry , must be so very upsetting for you
is your nan maybe in denial ? x x
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:34 am

awww bless him, how sad. If it's his time i hope its very peaceful - sending you hugs x
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michellenevan

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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:37 am

aww im so sorry hun x
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 6:40 am

I'm sorry lisa, hope you're all ok
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:19 am

Aww, Lisa.. am so sorry to hear about your grandad Sad and shocked at the treatment in the hospital. Thinking of you all. xxx
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Lisa
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:42 am

marioandthestuntbubs wrote:
Im so sorry Lisa. Im on the phone if you need anything.

What Jen said is true, he will not suffer from the withdrawal of food but i do disagree with the lack of pain relief. Ask if they use the liverpool care pathway there as if they are choosing to give him what we call TLC instead of active treatment to ease his passing they should have him written up for decent painrelief and any other meds required to make him comfortable. Its disgusting to just leave him. If you need any advice on the complaints procedure and making sure his needs are met text me. I cant promise to be any help but will do what i can

thank you ladies

yes they mentioned the liverpool care path - they said they will put him on that if he becomes distressed - so just a matter of time

of course I don't know what the measurements of paracetamol would do - he had been given 100 at 7am and 150 at about 10 or 11 - although not sure what measurement - do you think that would be doing anything? I assumed mg but that is hardly anything?
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Mario



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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:46 am

if that is the case its *$%£ all, if they have decided he is being treated as palliative push for the care pathway honey. he shouldnt be underanalgesed its cruel. im so feckin mad for you right now
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:48 am

Am just catching up on this thread Lisa and I am shocked by what the hospital have done. Really hope your grandad is comfortable now. Take care hun xx
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:51 am

my thoughts are with you and your family. take care hun xxxx
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:52 am

Lisa i'm so sorry, could it be that your nan is not going to cope well with him being so ill and she cant face what is to happen. or have that as her last memory of him.

i was there when my aunties dad died, she and uncle had gone away and i'm always glad her last memory of him was one of him being strong and not in the state he was at the end. i have the memory of mom being in itc haunt me at times.

just a thought hope your able to sort something out about his care, could the hospital social work team help, just a suggestion

big hug xx
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Lisa
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 7:57 am

marioandthestuntbubs wrote:
if that is the case its *$%£ all, if they have decided he is being treated as palliative push for the care pathway honey. he shouldnt be underanalgesed its cruel. im so feckin mad for you right now

it seems he is just in limbo - until he is distressed they wont move him to the geriatrics ward (where he would get more care I am sure) and they wont start this liverpool care path - so he's just on this feeble pain relief with no food or water

I don't get it at all because what do they have to lose from starting it now - save him getting distressed in the first place?!

I don't think my nan had any right to make the decision, she couldn't be bothered to go and see him and to just decide its not worth trying is awful

I read (how true I don't know) that there is a higher rate of patients that pull through if they are given high enough pain relief

I am mad with everyone right now, my mum has been trying to get him moved from a care home into a nursing home for months - the nursing home manager said they will say when they cant cope (he could hardly move and they have no hoists so it was all manual) - the social worked basically told my mum to stop poking her nose in - my nan could have had moved, she could easily afford it - but she has turned quite bitter towards him over the years like he is a burden to her. He couldnt eat himself and they werent the right people to be looking after him.

If he'd been in a proper nursing home Im sure he wouldn't have been so underfed in the first place and even if he had fallen he wouldn't have been so weak

I also feel so sorry for the people in his ward - they are there with broken legs etc and have him looking like death in the next bed, not nice for your stay in hozzy!

He has been let down big time.
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 8:01 am

He has and if your nan wont do it hon you need to kick up shit. We use the LCP from the second ppl are decided to be for TLC cos it prevents distress and indignity. Ask to speak to your PALS office, patient advice and liason service and shout really loudly at anyone who will listen.

Im not sure about the survival rates related to analgesia but unfortunately fractured hips do have a high mortaility rate both initially and in the year following surgery. That said your nan should really have visited and spoken to a doctor to get a balanced opinion.

Im so sorry hon. I mean it about only being on the phone if you need anything x
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Lisa
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 8:04 am

thanks chick, much appreciated!

I will get my mum to ring tomorrow morning as she knows more about whats been going on to explain
x
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 8:07 am

xxx
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LisaGandAmelia

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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 8:30 am

Oh Lisa what a horrible awful situation. I wish there was something I could do Sad Sad Sad Your poor poor grandad xxxx
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyWed Oct 06, 2010 8:35 am

Just wanted to say im thinking of you and your poor granda. Its appauling the way he is being left there. I agree it doesnt really sit right that your nan holds all the power but hasnt saw him to make an informed decision. Hope you get it sorted and your granda doesnt suffer xxx
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyThu Oct 07, 2010 6:16 am

How are things with your grandad today hun? x
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Lisa
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PostSubject: Re: My Grandad   My Grandad - Page 2 EmptyThu Oct 07, 2010 7:10 am

Well apparently he was much brighter today, had his eyes open and was more alert

Which is a kick in the teeth to my nan and the doctor who agreed to withhold his food and water - they should feel ashamed of themselves for giving up on him!

Hopefully they will now start to treat him like he isnt about to die!

x
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