so, we thought we could put it off for another 2years or so, but the occupational therapist has put in a referral to the wheelchair services for us already

i really don't know if i'm ready for the stares and nosy looks from people seeing her in a wheelchair on top of that lewis isn't walking yet so we'd have to have a wheelchair and a stroller, making it imposs for one of us to just 'nip out' with the kids

argh!!! i really thought this wouldn't happen for ages yet

awww no, bless you.

I really dont think that you would get many people staring, and if they do, then they are pathetic and not worth worrying about.

Hopefully they will let you go a little bit longer before you actually get it, so Lewis may well be walking by then.

x

Aww hun, even though they are getting her a wheelchair does she have to use it straight away?? Can't she keep using the buggy until she's too big or Lewis starts walking??? xxxxxx

I guess it will take a while before you get it, and even if you do get it before Lewis starts walking you don't have to use it if it Lilly-Ann is happy in the buggy! On the plus side it means you are on the lists and known ready for when you do need the wheelchair!

Xx

ooh Kenty youve just reminded me, have you seen that mothercare online are now doing a 'special needs' buggy/pushchair.

You probably have, and geez its £250!!

she doesn't HAVE to use it, but we need a new double anyways...so sam is saying just move her into a wheelchair as soon as it comes

is it the mclaren major buggy?? they really do price special needs stuff up high as they know it's a necessity

when we got the car i looked into special carseats...they started at £900!!!

Is this one Faye (Hope this works - lol !!)

http://www.mothercare.com/Maclaren-Stroller-Designed-Children-Special/dp/B001VBIN6K/sr=1-1/qid=1285267185/ref=sr_1_1/276-6059440-3082334?_encoding=UTF8&m=A2LBKNDJ2KZUGQ&n=42764041&mcb=core

i would use a double for aslong and lily ann was comfy in it xxxx

that's the one lisa...we went to a baby group for special needs yesterday and one of the ladies kindly bought one in to let us try the kids in...and she slumped like she does in a normal pram(you'll see tomorrow that her sitting is not good in pushchairs/highchairs ) it's amazing how cheap looking it is...it's a basic £30 stroller, made a lil higher and charged triple the price for

emma, lewis is kicking her in the back constantly...so we do need to either pay for a new double or use a wheelchair, not sure which is the lesser of the two evils

aww is a tandem not suitable ? the only reason i say stick with a buggy is for going out.there will be a atime when only one will be able to and need a double x

I did think that other than it looking like it would accommodate a child for a longer time, its not much different!!

Cant belive how 'exploited' the special needs market is.....feels very wrong! Surely life should be made easier/simpler, rather than harder/more expensive!!

Cant wait to meet her & Lewis

Aw hun, I'm sorry that it's come around much quicker than you thought xx

Just thinking - Have you considered the 'zoom' - think its called something else now though????

Its a tandem, they can look at each other (but rascal cant kick her - lol)

if it's a 'normal' double she can't use them generally, the strap between the legs is always too thin or loose so she slumps...the p&t is the only one we've ever found that works for her

maybe i should just give in to the wheelchair idea...it'll be better for her i guess but will mean she cant nap :?

dammit, she's not even 2yet, she shouldn't be going into one

awww i bet its so upsetting faye but atleast she will be comfy and it will suit her requitememts better than a buggy xx

Shes so lucky shes got a mum n dad like u guys........I agree, lifes very fookin unfair to some kids who deserve so much better!

you mean unlucky lisa...she seems to be embarrassed by us and pushes us away when we kiss her in public

Kenty am i right in thinking that the wheel chair will help her sit better? they have supports i'm sure in them.

if so it might be an idea to look into or actually speak to wheel chair makers on something that could be put in a double buggy to help keep her up right

you're right...and that actually doesn't sound like a bad idea, thanks kel!

they're bringing in a wheelchair services person to this new playgroup next week so it might be worth asking if we can get something like that....the buggy is quite a slanted back one though so dunno if they'll be able to

I hope it works out for the best in the end.

and I bet it wont be long til that little monkey of yours is walking.

at least lilyann is on the list for now instead of her going on it when you really need it and having to wait.

xxx

might be an idea for a new one then until you feel your ready for the wheel chair. i'm sure they can, as i;ve seen some tandems where at the front they sit very straight

kenty wrote:

you're right...and that actually doesn't sound like a bad idea, thanks kel!

they're bringing in a wheelchair services person to this new playgroup next week so it might be worth asking if we can get something like that....the buggy is quite a slanted back one though so dunno if they'll be able to

Have you seen the Mura 3 - they have a handle bar thing which come up between the legs and then out like bike handles
Maybe something adapted with that kind of thing would help as its rigid to stop her from sliding forward and good for her to hold onto for support, but maybe closer into wards her

http://www.maxi-cosi.com/ot-en/strollers/maxi-cosi-mura-3 thats a pic, cant get bigger though to see better

i had that pushchair with amelie its massive and comfortable and can seat both ways lay flat and upright and im sure u can use it up to the age of 4! comfortably xx i miss it ..it an amazing pushchair

Aww Faye, thinking of you hun. Don't know what to suggest hun just didn't want to read and run. Think Kelly's idea is a good one. If people stare its because they are ignorant hun, there is no cure for ignorance hun but hopefully someday there will be a cure for Retts.

Sorry to hear its come alot quicker then u thought it would x
I hope people dont stare x