awww fantastic !!!! bet thats a huge weight of your shoulders xx

so glad things are going in the right direction x

YAY!!! Thats brilliant news hun xxx

Sounds good but does that mean they dont think he has noonans? And is the other stuff cos of the craniosyntosis then? That would be fab if they can do the op sooner rather n later and help the wee chap pick up his development and stop all this worry his poor momma has had to go through

Im glad you are feeling more happy about everything

so glad it's good news hun!!!

So glad you feel lighter Good to hear and sounds positive xx

So does tis man he doesn't have noonans? x

Laura, I'm very pleased for you x

Ahhhh Laura thats much better news xxx

mario. it could be either or at this stage i asked the same question today and got a mixed answer. its basically a wait and see game. If he deffo has noonans then he is very very lucky and his is a very mild form. From all the noonie mums iv spoke to, no one has a mild noonie

the low muscle tone isnt an issue yet. his weight gain is. noonies are known for being shirties and have failure to thrive problems. ben has started to drop the centiles and isnt gaining weight as he should, BUT he is the right weight for his size. TBH i dunno wtf they are moaning about, i think he is a chunker.... he is 20 weeks old, 14lb 4oz, 62cm long and from googling, thats pretty spot on for his age, concidering he was early by 4 weeks???!!!

That seems pretty good to me hon. C was 13-10 at 21 weeks by her red book so fairly well within normal limits. I hope the wait and see works out to wait for good news xxx

Sounds positive, I'm very happy for you hun x

Aww Laura so pleased it was good news hun, have been thinking about you the last few days how you feeling?

fully loaded with the cold but gettin there x!

Glad it's good news Hun!! X x

Thats great news hun..not the cold part but his diagnosis/prognosis sounds more promising. So happy for you! xxx

awww laura im so happy to hear you have so clarification and a course of action!! really hope it all goes well, lots of hugs to scrummy ben xxxx

thanks every one. especially for puttin up with my FB moans lol!!

still a wee road to travel yet but the end does look brighter. im not in so much of a dark place with this any more

laura im so happy for u. x

aww laura just seen this x
So glad it goos news news xx

so pleased that you feel a little more relieved xx

Just saw this laura, thats fantastic news!
Glad things are looking up for you hun.

I love your FB updates- they are either hilarious (action men getting it on was a personal fave ) or very real/honest and reminds us all that we are human and everyone has ups and downs. Its nice to see people on FB that dont portray a 100% happy life for the sake of others.

So happy about lil Ben. x