kenty
Age : 39
Join date : 2010-08-24
Location : Leeds
Posts : 2260
 | |  Raising for Rett's Syndrome | |
hi girls!!
i know pretty much all of you know about Lily-Ann having Rett Syndrome...but for those that don't i'll just explain a little
Rett Syndrome is a rare but severe neurological disorder affecting girls. Although rare, it is the most common genetic cause of severe disability within females and causes sufferers to be entirely dependent each and every day. Girls with Rett Syndrome will need 24-hour care for the rest of their lives and will be unable to walk, talk or even use their hands.
Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders…all in one little girl
It has been proven that Rett Syndrome symptoms can be reversed in mice, but obviously to keep the research going to find out if it can work in humans costs money.
myself, sam and my brother are planning to do a 24hour walk, from London to Dover on 17th September 2011 and would be really grateful for any support you ladies can give(even just a 'you go girl!) as this is a cause that is really close to my heart
if anyone would like to donate my just giving page for this event is www.justgiving.com/doingitforlily-ann
thanks so much ladies for even taking the time to read this post | |
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well done, hope it keeps growing 
