mariheartselijah wrote:

well as you say its good that they are looking into it - although a 'stop being so silly' would have been nice. hope the tests come back fine. bit of a weird seizure if its just in the one leg at particular times?!

That didnt surprise me over much as i have seen that before. Full grand mal fits are referred to as tonic clonic as tonic is the rigid stiffening and clonic is the jerking and you can get partial clonic seizures but id ruled out that in head as she stays awake and doesnt have any mental lag after. I did naughtily google this thing she is suggesting though and found this:

http://www.ncbi.nlm.nih.gov/books/NBK7302/

Benign Myoclonus of Early Infancy

Benign myoclonus of early infancy, also referred to as benign nonepileptic infantile spasms, is a syndrome in which infants have clinical events suggestive of infantile spasms but with a normal EEG and clinical development. The events, which begin between 3 and 8 months, resemble infantile spasms, with clusters of flexion or extension extremity movements. However, unlike spasms, both the interictal and ictal electrographic pattern are normal. Regardless of treatment, the events resolve spontaneously at 2 to 3 years of age. Head magnetic resonance imaging (MRI) and neurologic examination are normal, as is the developmental outcome. No subsequent seizures of any type are noted on follow-up (17,18).


thats actually set my mind at rest a bit havig seen that, if thats what she thinks it is then its not as bad as the need for an EEG made it sound

hm that does sound really really similar to what you have been describing - best of a bad bunch? i suppose although it would be horrible for a while at least it isn't causing lasting damage or likely to damage her long term development (i've been at the google tonight and have convinced myself that elijah's squint is actually him going blind or something, so there is a cautionary aside on google!)

Well yeah if it is that Im fairly reassured by that like you say she will grow out of it wth no long term effects so its hugely preferable to anything that might show up on an EEG or any hip dysplasia.

Managed to get a minute and a half video of it during the milk this morning showing properly how she stiffens it out first before jerking it then my sodding phone crashed and i lost the lot. Am well peeved. Just as well ive go plenty of time to try again

Only just seen this. I really hope the tests come back ok and shes just a restless little monkeychops xxx

typical innit that as soon as you want to get some 'evidence' it suddenly becomes impossible, get some cctv thats not creepy at all

well glad they are not too worried. its prob nothing n just some thing weird she does. not in a bad way but just has the need to do it n then it bugs her if u get me?

like you know when some thing smells bad but u have to smell it nay way? like that? she knows it will bug her if she does it but does it any way?x

I have only just caught up with this.

It sounds like she isnt too concerned but is obviously good at her job and wants to rule the other two options out.

I hope you get the appointments through asap so you are not stuck around waiting for ages xx